Partners 2015

Health Behaviour in School-Aged Children (HBSC) - a World Health Organization Collaborative Cross-National Survey

The World Health Organisation (WHO) designated the University of St Andrews' School of Medicine as its Collaborating Centre for International Child and Adolescent Health Policy (WHO CC) in October 2013. This prestigious appointment endorses the international research and policy-influencing work of the School's leading researchers in the field of population and behavioural health sciences. The WHO CC has several strands of work related to social determinants of health and prevention of health inequalities, reduction of youth violence, and prevention of risk behaviours such as drug use. Additionally, it seeks to use research to inform policy and practice aimed at improving young people's health, well-being, health behaviours, and supportive social contexts. In this regard, the WHO CC works closely with key stakeholders including the Health Behaviour in School-Aged Children (HBSC) study to increase its policy impact and knowledge exchange efforts.

The HBSC is an international alliance of researchers that collaborate on the WHO collaborative cross-national survey of school students, Health Behaviour in School-aged Children. Initiated in the early 1980's, the study collects data every four years on 11-, 13- and 15-year-old boys' and girls' health and well-being, social environments and health behaviours. The research venture dates back to 1982 and shortly thereafter it was adopted by the WHO Regional Office for Europe as a collaborative study. HBSC now includes 44 countries and regions across Europe and North America. This collaboration brings in individuals with a wide range of expertise in areas such as clinical medicine, epidemiology, biology, pediatrics, pedagogy, psychology, public health, public policy, and sociology. The study has therefore involved cross-fertilization of a range of perspectives that has resulted in an innovative scientific framework which captures the contextual environment in which young people live thus allowing us to gain an insight into determinants and possible mediators and moderators of young people's health. As such, HBSC has earned a reputation as a unique provider of key internationally comparable statistics of the health and health-related behaviours of young people.

This conference is the first of its kind to bring together the Health Behaviour in School-aged Children study, the Excellence in Pediatrics Institute and the WHO Collaborating Centre for International Child and Adolescent Health Policy to build knowledge, foster dialogue and progress innovation in research and practice within the field of children and adolescent health. The HBSC study provides secular trends across countries for a wide variety of key measures within adolescent health. Pediatricians are in a unique position to critically examine this data, contextualise it, and use it to support and promote healthy behaviours in the young people they care for. The WHO CC can foster advocacy efforts to prioritise adolescent health issues and implement policy recommendations for national and international bodies. All in all, it will be an excellent opportunity to make research and data relevant to practitioners, as well as to better familiarise researchers with the challenges and opportunities of pediatric clinical practice.

This event will provide a unique collaborative opportunity for key players in the adolescent health field to access and discuss international research findings on adolescent health, to consider current challenges and opportunities within pediatric clinical practice, and to find solutions to some of the most pressing issues facing young people today.

The Leadership Foundation for Higher Education

The Leadership Foundation is a membership organisation that delivers leadership development and consultancy advice to higher education institutions in the UK and around the world. The focus of the Leadership Foundation's work is to improve the management and leadership skills of existing and future leaders of higher education. The services provided include consultancy, leadership development programmes and events, including a major series of events for governors. This work is supported by a highly regarded research and development programme that underpins the leadership development programmes and stimulates innovation.

The Leadership Foundation has a small team of experienced leadership and organisational development professionals drawn from higher education, other parts of the public sector, and also from the private sector. Much of the Leadership Foundation's work is delivered in partnership with the higher education sector and other partner organisations. www.lfhe.ac.uk

 

SUPPORTING ORGANIZATIONS 

British Paediatric Surveillance Unit

The British Paediatric Surveillance Unit (BPSU) enables doctors and researchers to find out how many children in the UK and Republic of Ireland are affected by particular rare diseases or conditions each year. The Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the Institute of Child Health (ICH) to support research into rare childhood disorders.

The International Network of Paediatric Surveillance Units (INOPSU)

 The International Network of Paediatric Surveillance Units (INOPSU) is a collaborative organisation. Established in 1998, it currently joins 12 diverse countries which span the globe from Canada to New Zealand. More than 8000 clinicians contribute and over 200 conditions have been studied so far.  Our mission is "the advancement of knowledge about rare and uncommon childhood infections and disorders through the participation of paediatricians in the surveillance on a national and international basis". 

The Global Coalition Against Cervical Cancer (GC3) 

The Global Coalition Against Cervical Cancer (GC3) assists low- and middle-income countries and regions in the country-driven implementation of comprehensive, sustainable, and effective cervical cancer prevention and control. GCaccomplishes its mission through stakeholder engagement and capacity building by providing collaborative training and education of in-country personnel, technical assistance, and technology transfer.

Our VISION is to reduce the global number of cervical cancer cases 25% by 2030 and 50% by 2040.

Approximately every two minutes a woman dies from cervical cancer.1 Even though it can be effectively identified and treated, cervical cancer remains the world’s third most common cause of female cancer-related mortality. Unlike other major cancers, cervical cancer primarily occurs in middle-aged women, just at the age when they are highly productive members of society, working and raising families, which compounds the devastating social impact of this disease on families and communities.

Cervical cancer is a cancer of the poor. It primarily affects populations that lack access to basic healthcare services. According to the World Health Organization’s International Agency for Research on Cancer, in 2008 more than 85% of the 530,000 cervical cancer cases worldwide occurred in low- and middle-income countries (LMICs).2 In LMICs, cervical cancer is often the leading cause of female cancer-related and all cause-related mortality. With appropriate prevention and control programs in place, virtually all deaths from cervical cancer can be prevented.

The Global Coalition against Cervical Cancer (GC3) is a means to this end. GCis a consultative coalition of stakeholders determined to solve cervical cancer. Our team of dedicated professionals provides the expertise needed to assist LMICs in developing the necessary infrastructure, training, and technical ability to provide country-driven solutions to avert cervical cancer’s devastation.

Asia Oceania Research Organisation in Genital Infection and Neoplasia (AOGIN ) 

Asia Oceania Research Organisation in Genital Infection and Neoplasia (AOGIN ) is an expert multi-disciplinary group within the region and along the lines of European Research Organization on Genital Infection and Neoplasia (EUROGIN) / European Course on HPV Associated Pathology Virus (ECHPV), as developed for Europe and, more recently, Latin America.   AOGIN works with health care workers (as well as the lay public), particularly those in women’s health with the goals of collaboration and research, scientific exchanges, education and training, providing information, surveys and audits. AOGIN brings together clinicians and scientists whose work is related to genital infections and neoplasia.

AOGIN's vision is to reduce the burden of disease caused by reproductive tract infections, especially HPV, in the Asia, Oceania and Pacific region. Furthermore, AOGIN's mission is to work with governments, non-governmental organisations, learned societies, health care workers and the lay public, to communicate, cooperate and share information and tools in order to reduce the burden of disease caused by reproductive tract infections, especially HPV, in the Asia, Oceania and Pacific region. We regularly hold biennial major international conferences and interim regional meetings.  Our last biennial meeting was held in Beijing in 2014 and our coming biennial meeting will be in Singapore in 2016.  In addition, we also work with local organizations to hold regional educational workshops on cervical screening and colposcopy.  

 

WellChild

There are thousands of children and young people living with a serious illness or complex health condition in the UK. WellChild is the national charity working to ensure the best possible care and support for all these children, young people and their families wherever they are and whenever they need it. This is done by providing a range of programmes that make a huge impact on the lives of these families. These include:

WellChild Children’s Nurses

Central to the programmes on offer is the growing network of WellChild Children’s Nurses who work across the UK in community and hospital settings. They provide essential and individualised care and support to many of these children and young people, including those who are technology dependent. A crucial part of their keyworker role is focused on enabling early discharge from hospital so that care can be provided at home. Supporting these families through the process helps to reduce the practical, emotional and financial impact they often experience.

WellChild Projects

WellChild has funded countless initiatives to improve the lives of seriously ill children, young people and their families. This includes a range of projects to help create a better understanding of how care is provided at home and give parents and carers access to the information they need. One example of this is the Medicines for Children website developed in partnership with the Royal College of Paediatrics and Child Health and the Neonatal and Paediatric Pharmacists Group.  This free, practical and reliable resource on over 100 children’s medicines provides useful information for parents through leaflets and videos. Another practical resource is ‘My Child Is In Pain’. Developed at the University of Central Lancashire with parents this interactive website gives advice on how to manage pain after a child has had day surgery.

WellChild Family Tree

The WellChild Family Tree provides families of seriously ill children with a safe place they can chat to other parents and carers and support each other online via a closed Facebook group and also face-to-face through local ‘branches’.  Dedicated support to children and young people with the rare condition Wolfram Syndrome and their families is also provided through the Wolfram Syndrome Family Coordinator who works closely with the specialist team at Birmingham Children’s Hospital.  

WellChild Helping Hands

Caring for a seriously ill child or young person with complex care needs at home can, at times, be challenging. Jobs such as decorating a child’s bedroom or making the garden a safe play space often get pushed to the bottom of the priorities list as they focus on caring for their child’s complex needs. WellChild Helping Hands is a unique scheme which works across the UK with the support of teams of volunteers from local companies and organisations, to tackle these simple but essential home and garden improvements.

The Cystinosis Foundation

Our story begins in 1982, when Joshua, grandson of Jean Hobbs-Hotz, was diagnosed with this ultra-rare metabolic condition. There was no treatment available. The first treatment for Cystinosis would not arrive until 1994.

Unwilling to do nothing and at the suggestion of Jerry A. Schneider, M.D., with support from family and friends Jean established the Cystinosis Foundation for the purpose of serving all individuals living with Cystinosis. From the start we have collaborated with scientists, clinicians, families and industry to improve the care of individuals and families coping with this condition.

Making a difference since 1983 for the child born today, our mission focuses on educating patients, parents and medical professionals about this ultra-rare condition, mentoring the establishment of patient support groups across the globe and serving the needs of patients and their families.

The Cystinosis Foundation works beyond borders, empowering parents and mentoring the establishment of support groups in 16 different nations, helping to remove painful feelings of isolation that accompany this ultra rare metabolic condition. We believe that nothing is too small to know and nothing too big to attempt.